Daniel on the Go

Daniel loves being in the jogger/bike stroller!

Nurse Dad - Delayed Intensification Part 2

Wednesday (9/8/10) started the second half of Delayed Intensification. Charlie had four different types of chemo over the course of 7 hours in clinic. One was in his spine during a lumbar puncture, and three were through his IV port. One of the medicines can be very harmful to his bladder so they pumped hours worth of IV fluid through him to flush it out without damage. We also have to administer chemo through his port at home nightly. In one of the pictures above you can see Chad giving Charlie his first dose under the watchful eye of Nurse Sally. It was a very long day, but both boys were troopers. It helped that Granddan and Garney were there for the first part of the day before heading home. This part takes 4 weeks, but then we should be on our way to Maintenance.

Head Shaving Neighbors

When Charlie was diagnosed many of the famous "Colgate Place" neighborhood men offered to have a head shaving party in solidarity. On Labor Day we gathered in the front of the Berscheid's house and buzzed Dave AND Andrew's head! Jarrett, John and Daddy had already used the clippers for their new (and everyday) dos. Take a look at Andrew's before and after shots!

Head shaving neighbors

Practice Tubies

We've posted about Charlie's central IV line or mediport that was put in for his chemo. Everytime we go to the clinic he has to be "accessed" through this port. This is usually a scary experience for him so we decided to "practice" having "tubies" accessed every night to make it a normal event. Hopefully our work will pay off and Charlie will be more calm in clinic the next time he has to do it for real. This video below shows Chad and Charlie going through the routine. Hopefully our nurses will see this and witness the progress.

Train Museum

Train Museum

The Colorado Train Museum is heaven to 3yr old boys and 59 year old men. We took Charlie, Daniel, Garney and Granddan to this mecca on Saturday. Charlie had a great time climbing on train platforms, turning knobs and watching the model train run. Granddan had a great time taking pictures, talking about trains and watching the model train run. It was a great place to go, not too many children to catch germs from and we used our free passes that the Children's Hospital gave us a few weeks ago. We hope to get back to the museum before the end of the month for the Thomas the Tank Engine day. Now that would blow his little mind. I put together a few pictures in the album above, note that Daniel slept through just about the whole trip.