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Tuesday, April 23, 2013
The Last Lumbar Puncture
The first of a series of very important "Lasts." Charlie's last Lumbar Puncture and chemo injection into his spinal fluid. I put a picture of him laying in recovery for the last time right next to the very first clinic appointment and spinal back in April of 2010. You can read about the first visit 8 days into his treatment here. It is so hard to believe that we are here, at the end of that LONG road that was so hard to navigate 3+ years ago. What a transformation! And just to point out... Puppy blanket was in attendance today, just stuck under the covers for the photo shoot.
Sunday, April 21, 2013
Spider-Web Park
It's uncommon, but every now and then Daddy goes on a business trip and leaves Mom with the kids! Usually it is the other way around....What do we do? We go to the park and ensure as much energy is expelled as possible! Sunday afternoon was so pretty, sunny and 60. So we picked up Nana and went to the Spider-Web park. Daniel and Charlie call it that because one of the play structures looks like a spider web. you can barely see it in the pictures, but I think I have a shot of Daddy at the top of the Spider web somewhere I might have to add...
Ana had a great time climbing the VERY TALL slide and going down on her tummy, in her church dress. Mommy FAIL. She managed to not break her nose or her arm, Mommy WINNING!
Ana had a great time climbing the VERY TALL slide and going down on her tummy, in her church dress. Mommy FAIL. She managed to not break her nose or her arm, Mommy WINNING!
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| Spider-Web Park |
Thursday, April 18, 2013
Primrose Curriculum in Action
Another funny-gram from the directors at Primrose! This one came at a great time when Mom was in the middle of a long week away from home on business. I think Wendy knows just the right time to send these things! The text reads:
Hi Mom and Dad,
You know I am not one of those “Conspiracy Theorists”, but I am
beginning to question the design of the curriculum and my teachers’
motives for our different educational activities.
The other day we were playing with manipulatives and they were talking
about how these linking toys help promote our small/fine motor
development and give us early exposure to color recognition. While all
of that might be true, I just think it is quite coincidental that they
had a camera ready right then when the “crown” was placed on my head.
I’m just saying that it is possible that the they use the curriculum
objectives as an opportunity to do things for their own amusement. Then
again, who cares? It was pretty funny!
A close up of Miss Ham Bone:
Tuesday, April 16, 2013
Light the Night Honored Hero 2013
Charlie has been asked by the LLS Rocky Mountain Chapter to be the Honored Hero for the 2013 Light the Night Walk!
As described by LLS, "An Honored Hero is a dedicated individual, patient or survivor of blood cancer, who provides inspiration and support to Light The Night participants, volunteers and staff. Honored Hero share their strength, courage and motivation with Light The Night walkers and provide encouragement. In return they are welcomed into a community of individuals fighting for a cure, providing hope to those affected by blood cancer."
The way we explained it to Charlie was that he gets to be THE LINE LEADER at the walk this year in September. For a competitive 6 year old, that is a BIG deal! In addition to being on the stage and kicking off the walk, Charlie will attend sponsorship events while Mom and Dad speak to the teams about their cancer story and the many benefits LLS provides. Look for more information as the year goes on and plan to join us for this worthwhile event.
If you are interested in joining our team please click here: Join our Team
Donations are always welcome! Follow this link to our team page: http://pages.lightthenight.org/rm/DenverL13/CharliesCancerCrushers
Saturday, April 13, 2013
Dan, Dan the No Pants Man
He's Potty trained, just not Pants trained. This kid LOVES to go without pants. I'm worried about the teenage years.
Tuesday, April 9, 2013
Charlie Visits the Dentist
Okay, confession time. A couple weeks ago, Charlie visited the dentist for the first time. I know, your saying, "He's six years old and just now going to the dentist for the first time?" Well yes, and while that's most definitely too long, I'm going to pull the cancer card and play it.
The truth is we had him scheduled to go a few times, but it just happened that those appointments got scrubbed because his numbers were too low and I think one time he came down with something. Oncology doesn't want him to go when he's susceptible to infection, so we had to cancel those appointments. Well, the stars aligned and we were finally able to get him in.
It's always fun to post about new experiences, but I wanted to add this post to record and relay new information we learned. We were told early on that the chemo could have an impact on the development of Charlie's teeth and whether or not I was told this specifically, I was always under the impression that his teeth would have weakened enamel and be more prone to get cavities. I may have told this to some of you out there. While that is still true, I also learned that the chemo could also make it so that some of his adult teeth never formed or never fully developed. He could have teeny-tiny or be completely missing some of his adult teeth.
Well, let's don the lead cape and find out. How exciting!
It turns out that Charlie has all of his adult teeth and all of them are fully formed. Yea! Charlie also did fantastic for his appointment. It didn't hurt that both the doctor and tech that saw him were some pretty cool, young dudes. The doctor was finishing his residency and was about to start his own pediatric practice and the tech had a pretty kickin' mohawk. They poked around and the diagnosis is that Charlie has some strong teeth and no cavities. This is pretty surprising considering that I give him his meds every night mixed with strawberry pancake syrup. On the flip side, one of Charlie's favorite snacks is apples . . .
The truth is we had him scheduled to go a few times, but it just happened that those appointments got scrubbed because his numbers were too low and I think one time he came down with something. Oncology doesn't want him to go when he's susceptible to infection, so we had to cancel those appointments. Well, the stars aligned and we were finally able to get him in.
It's always fun to post about new experiences, but I wanted to add this post to record and relay new information we learned. We were told early on that the chemo could have an impact on the development of Charlie's teeth and whether or not I was told this specifically, I was always under the impression that his teeth would have weakened enamel and be more prone to get cavities. I may have told this to some of you out there. While that is still true, I also learned that the chemo could also make it so that some of his adult teeth never formed or never fully developed. He could have teeny-tiny or be completely missing some of his adult teeth.
Well, let's don the lead cape and find out. How exciting!
It turns out that Charlie has all of his adult teeth and all of them are fully formed. Yea! Charlie also did fantastic for his appointment. It didn't hurt that both the doctor and tech that saw him were some pretty cool, young dudes. The doctor was finishing his residency and was about to start his own pediatric practice and the tech had a pretty kickin' mohawk. They poked around and the diagnosis is that Charlie has some strong teeth and no cavities. This is pretty surprising considering that I give him his meds every night mixed with strawberry pancake syrup. On the flip side, one of Charlie's favorite snacks is apples . . .
Monday, April 8, 2013
Charlie's 6th Birthday Party
We promised more photos from Charlie's birthday party and here they are. Only three weeks late, not too bad . . . ha!
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| Charlie's 6th Birthday Party |
Sunday, April 7, 2013
Three Years Ago Today
This is the day that lives in infamy. Three years ago today, Charlie was diagnosed.
It's funny, I think that day will always have an impact on the way we think, the things we do and most certainly the way we look at Charlie. But I am happy to say that we've moved on. So much so, that we almost let the day slip past without us even recognizing it. Granted, our lives are busy. Especially on Sundays while we are trying to get ready for the week and especially especially on Sundays of weeks that our mommy will be gone. However, I can definitely say that while we may forget the date, we will never forget the day.
Here's a picture to show through it all, he remains a happy, (somewhat) healthy little boy.
We love you Charlie! And we're so proud of you.
It's funny, I think that day will always have an impact on the way we think, the things we do and most certainly the way we look at Charlie. But I am happy to say that we've moved on. So much so, that we almost let the day slip past without us even recognizing it. Granted, our lives are busy. Especially on Sundays while we are trying to get ready for the week and especially especially on Sundays of weeks that our mommy will be gone. However, I can definitely say that while we may forget the date, we will never forget the day.
Here's a picture to show through it all, he remains a happy, (somewhat) healthy little boy.
We love you Charlie! And we're so proud of you.
Photo Album Catchup
Call it busy, call it lazy . . . it's probably a healthy dose of both. We just haven't put some photo albums on the blog in a while. So here's a blast of them from the last few months. No captions, I'll just let the photos speak for themselves.
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| Ski Trip 2012 |
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| Snow Boys |
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| Dyeing Eater Eggs |
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| Easter Egg Hunt 2013 |
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