Sunday, June 19, 2011

Daniel's Second Steps


The video is of Daniel's second steps. Chad witnessed the first steps then quickly recorded the second attempt. He is so happy with himself when he walks! Just listen to that excited scream. Now Daniel needs to practice his balance and decide to walk instead of crawl when he wants to get somewhere fast!

Father's Day 2011

Georgetown Loop

For Father's Day, my gift was a family trip to the Georgetown Loop to take a ride on a genuine steam engine driven train. As you can tell from the album, everyone had a fabulous time riding the rail and I enjoyed a great day with the boys. The morning was finished off with lunch and a beer at Tommyknocker Brewery in Idaho Springs. Except for coming down with a cold, it couldn't have been a better day. Thank you to Mom for the train ride and thank you to Nana for the lunch.

Wednesday, June 1, 2011

Pre-K and Other News



Yesterday Charlie officially started in his new Pre-K classroom. We are excited for him because this room brings about a lot of new experiences. This year Charlie will get to take field trips. They have plans to go to the zoo and visit some parks. Also, after the Summer session is over and the school year begins Charlie will start to wear uniforms.

Charlie was really excited to move up with some of his close friends to a classroom full of new friends. It was all he could talk about last night and this morning was no different. We are looking forward to an exciting Summer for him and a school year full of new things to learn.
Daniel is still in the infant room, but not for long. He will be moving up to the Toddler room in July. He couldn’t really care less about the move, but Mom and Dad are excited because they will be getting a significant pay raise.

Right now Daniel is a superfast crawler. We have to watch out because he can get from his room to the top of the stairs in about 2 seconds. We are back into the Distract & Corral method of parenting for him . . . it’s been a while. He can also stand by himself for about a minute and he loves to cruise behind his walker.

In other news, the weather has been fantastic for the past couple of weeks. We have probably spent more time outside the house on the weekends than we have inside. We have enjoyed several outside dinners and evenings on the front porch swing. Daniel loves to sit in a lap, swing and watch the neighbors. Charlie has had lots of fun helping us and some neighbors dig in their gardens. The boys also enjoyed a bike trailer trip down to the park last weekend at the expense of Dad’s legs. They have plans to do it again and often.

Monday, May 23, 2011

Cancer Update: Routine Visit

Charlie had his monthly chemo visit today. When he goes in on a "routine" day, he sees his doctor, or nurse practitioner for a check up. They ask about how he has been feeling, acting and handling the meds. They are always concerned about any bruising, due to low platelets, rashes, or anything that we may have noticed in the past four weeks. Charlie's primary nurse will then come in and access his medi-port. She will take a blood sample and then hook him up to the iv bag for his vincristine. The process is usually very fast, under 20 mins, the port is deaccessed and he gets to go home. Later the nurse calls us with the results of his full blood work up. He is getting better and better about having his port accessed on routine days. When we go in and he doesn't feel well the port access is borderline torture for him and everyone involved.
Today the nurse informed us that his ANC was over 3000. This is not a good thing. While in maintenance his ANC should be between 750-1500. The higher it is means one of two things: 1. the chemo he takes nightly isn't a therapeutic enough dose (aka, he needs more) or 2. He has an infection. We are betting that Charlie has another viral infection at this point. Daniel has a fever, cough and runny nose that started Sunday, so chances are Charlie will have a fever in the next day or two. That means another trip back up for blood counts. The doctor however is concerned about option 1 because his counts for the last few months have been 1600+, 1800+ and now 3000+. So she has instructed us to increase his 6MP pill from one tablet every night to 1.5 tablets every M/W/F and 1 tablet on T/TH. The first week after his chemo visit the pill box is so confusing! Chad sets alarms on his phone to make sure we remember that it is time to drug him up ;)