Since we returned from Children's mid week, Charlie has started to act more and more like his old self. The biggest improvement is that he is now walking again! He goes up and down the stairs and is pictured above standing at his play table and playing with his new "kitchen" toys. Grandmommy left this afternoon and she was pleased that she was able to witness real progress with his development. Ditching the daily steroids has helped tremendously with his fatigue, appetite, walking and overall disposition. The one thing we are battling is a set back in the potty training. This happened the last time Charlie spent time in the hospital, he just stops letting us know that he has to potty. I am doing lots of laundry and going back to the basics, but at least his rediscovered walking it makes it a bit easier. Charlie started a new round of chemo meds on Wednesday. This phase lasts for 4-8 weeks and I have been told that the side effects should not be as severe as they were for the first month of treatment. Charlie's hair is getting thinner and thinner and he has some small bald patches. I'm thinking we will have to do something different hair wise in this next phase. The doctors FINALLY got his ear infections under control and he is getting a new set of ear tubes this upcoming Wednesday. For those of you counting, this is the third set in a little over three years.
Friday, May 14, 2010
Feeling like himself
Since we returned from Children's mid week, Charlie has started to act more and more like his old self. The biggest improvement is that he is now walking again! He goes up and down the stairs and is pictured above standing at his play table and playing with his new "kitchen" toys. Grandmommy left this afternoon and she was pleased that she was able to witness real progress with his development. Ditching the daily steroids has helped tremendously with his fatigue, appetite, walking and overall disposition. The one thing we are battling is a set back in the potty training. This happened the last time Charlie spent time in the hospital, he just stops letting us know that he has to potty. I am doing lots of laundry and going back to the basics, but at least his rediscovered walking it makes it a bit easier. Charlie started a new round of chemo meds on Wednesday. This phase lasts for 4-8 weeks and I have been told that the side effects should not be as severe as they were for the first month of treatment. Charlie's hair is getting thinner and thinner and he has some small bald patches. I'm thinking we will have to do something different hair wise in this next phase. The doctors FINALLY got his ear infections under control and he is getting a new set of ear tubes this upcoming Wednesday. For those of you counting, this is the third set in a little over three years.
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