Nana and her mini-me.
Saturday, May 25, 2013
Warm Weather Fun
Nana has the kiddoes while Mom and Dad have a date. She brought over treats to celebrate the holiday weekend and the fantastic weather.
Thursday, May 23, 2013
Portastrophe
So, I am sure some of you out there are wondering how Charlie's port removal went this morning. The answer is that I am sure his port removal would have gone fantastically . . . had it actually happened.
The day began with Daniel and Charlie heading downstairs around 5:30 am, as they sometimes do. Yes, I said 5-freakin'-30. If one of them wakes up, both of them wake up and they head downstairs and watch cartoons. I got up shortly after to make a cup of coffee and so begins that routine we conduct 250+ days a year. Well Charlie and Daniel ask for breakfast and I absent-mindedly hand them a squeezy yogurt and breakfast bar, respectively, thinking nothing of it. Shortly afterward, Angela comes down with Ana dressed and ready for school.
"Charlie, you didn't have breakfast did you?" asks Mom
"Yes" answers Charlie
"Oh, $#!+!!!!!" thinks Dad
Since Charlie has to go under general anesthetic for his procedure, he can't have food 8 hours in advance. Mom quickly confirmed that there was no point in heading to the hospital and Dad proceeded to take the kids school. Charlie was severely disappointed, not because he really wanted to undergo surgery, but I think he was really looking forward to spending the rest of the day at home with Mom.
The truth is that the night before I had actually thought about the fact that Charlie couldn't have breakfast in the morning, but I just wasn't thinking on all cylinders that early in the morning. And I have to give credit to Angela, she didn't remind when I got out of bed because she thought it would be "nagging". I just didn't follow through . . .
Charlie's port removal has been postponed to next Wednesday, which in hind sight may not be all that bad. Charlie numbers were pretty bad from Tuesday's clinic visit and while they didn't see a problem with carrying on with his surgery, it can't hurt to have him rebound a little before going back in. At least, that is what I will keep telling myself.
The day began with Daniel and Charlie heading downstairs around 5:30 am, as they sometimes do. Yes, I said 5-freakin'-30. If one of them wakes up, both of them wake up and they head downstairs and watch cartoons. I got up shortly after to make a cup of coffee and so begins that routine we conduct 250+ days a year. Well Charlie and Daniel ask for breakfast and I absent-mindedly hand them a squeezy yogurt and breakfast bar, respectively, thinking nothing of it. Shortly afterward, Angela comes down with Ana dressed and ready for school.
"Charlie, you didn't have breakfast did you?" asks Mom
"Yes" answers Charlie
"Oh, $#!+!!!!!" thinks Dad
Since Charlie has to go under general anesthetic for his procedure, he can't have food 8 hours in advance. Mom quickly confirmed that there was no point in heading to the hospital and Dad proceeded to take the kids school. Charlie was severely disappointed, not because he really wanted to undergo surgery, but I think he was really looking forward to spending the rest of the day at home with Mom.
The truth is that the night before I had actually thought about the fact that Charlie couldn't have breakfast in the morning, but I just wasn't thinking on all cylinders that early in the morning. And I have to give credit to Angela, she didn't remind when I got out of bed because she thought it would be "nagging". I just didn't follow through . . .
Charlie's port removal has been postponed to next Wednesday, which in hind sight may not be all that bad. Charlie numbers were pretty bad from Tuesday's clinic visit and while they didn't see a problem with carrying on with his surgery, it can't hurt to have him rebound a little before going back in. At least, that is what I will keep telling myself.
Tuesday, May 21, 2013
Charlie's Last Chemo
Today Charlie had his last Chemo push at clinic!
After three of getting Charlie used to getting his port accessed it was maybe a little anti-climactic. However, it was a good time to reflect on all the things Charlie has been through and how far he has come. We were reminiscing with Sally about how bad Charlie use to be at getting his "tubies". For a long time he hated getting the numbing cream put on his bump. Then, he despised taking his shirt off in the clinic. After that, we had to start and stop the whole "access" process two or three times before he sat still enough. Now, as you can see from today's album, he is an old pro. It's almost like those first two years never happened. As I've posted before, these clinic visits have become some good one-on-one time with Charlie.
After three of getting Charlie used to getting his port accessed it was maybe a little anti-climactic. However, it was a good time to reflect on all the things Charlie has been through and how far he has come. We were reminiscing with Sally about how bad Charlie use to be at getting his "tubies". For a long time he hated getting the numbing cream put on his bump. Then, he despised taking his shirt off in the clinic. After that, we had to start and stop the whole "access" process two or three times before he sat still enough. Now, as you can see from today's album, he is an old pro. It's almost like those first two years never happened. As I've posted before, these clinic visits have become some good one-on-one time with Charlie.
While today was Charlie's last chemo push, you can see that he still has another 18 days of chemo pills. Or at least he would if his ANC wasn't so low. Charlie's counts were at 480, which all of you that follow along know is low enough to get him off meds for while. We will be withholding Charlie's metho and 6MP for next week while his numbers rebound, but he still has to take his steroids this week (booooo!). So, we still have a grumpy kid for the next three weeks, but after that we start to see a much more agreeable Charlie . . . hopefully for good.
Enjoy the album! Next up, Charlie gets his port removed on Thursday! YEA!!!!!! Check back soon.
Enjoy the album! Next up, Charlie gets his port removed on Thursday! YEA!!!!!! Check back soon.
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| Charlie's Last Chemo |
Wednesday, May 8, 2013
Day at the zoo
Charlie and his Primrose Explorers class at the Denver Zoo. Mommy went as the parent chaperone. Good thing I am used to little boys, we had 7 of them running around and one little girl. It rained the majority of the time, but a few concession stand umbrellas and we were good to go!
Tuesday, May 7, 2013
End of Chemo Party Invite
Charlie's End of Chemo Party
Saturday, June15, 2013 at 11:30 am
7844 E Colgate PL Denver CO
Help us make this an event to remember!
Food, Friends and Fun!
Come and Go, Lunch served at Noon.
RSVP to angela.hooper@gmail.com
or 720.375.1913
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