Later in the morning, Cody, the education lady, taught Charlie about how to care for his IV port and how it is not scary and that it doesn't hurt. She had a neat doll that she demonstrated on called "Dakota." Dakota's chest had multiple layers of "skin" that she peeled back to show the port and how it connected into the heart. Charlie got his big scary chemo shot, one in each upper thigh around 11am and after an hour of observation, and a quiz on how to administer all of his meds, we were discharged. I am convinced that all of the families look like gypsies while they are moving out of Children's . We had bags and bags of just toys and games and books that visitors and the hospital staff showered upon Charlie. It took many trips to unload the Tahoe.
We arrived home to our favorite cul-de-sac birds courtesy of John and Tonia Wilson. (Thanks Guys!)
Charlie ate a big lunch and did his normal chatter at the table. He took a 2.5 hour nap in his own bed which I am sure felt great. He did tire out pretty quickly when playing with Abby from next door, and with granddaddy on the swing. I expect him to have less energy now given the loss of red blood cells, he's also getting more pale....
He was pretty upset about taking his meds after dinner and it took Me (Mom)15 mins just to get every dose measured out and ready for intake. Learning to take meds again peacefully is going to be a process.
We head back to the hospital on Wednesday for our first clinic appointment which should include a spinal tap, and IV chemo. For now we are going to stock up on hand sanitizer and try to settle into a new routine.
So happy to be home... now comes the hard parts......
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