Well today was another tough day dealing with the intense diaper rash, but all that was made insignificant due to some unexpected progress.
Today Charlie took his first unaided steps in more than month. He walked all the way from the bathroom back into the den without any help. Later in the day, he also walked unaided out of his bedroom to the top of the stairs after a nap and did more walking around the house while holding our hands.
It was so relieving and reassuring to see concrete evidence that the torture we are putting his little body through is for a good reason. Yes, we have seen the numbers on his counts go down and that is great news, but those are still just numbers on page. Ang made a comment on seeing him walk that she could finally tell how tall he was. How strange it is to think that for the last month or so we haven't seen him fully upright. He did actually look taller. It was like seeing him again for the first time in a long time.
This small bit of corner turning could not have come to soon. We are hoping to build on this to take some of the burden of Angela during the week. Pretty soon she will be less able to pick him up, so it is huge that there is hope that he will be more self-sufficient down the home stretch to new baby.
2 comments:
Yay Charlie! First steps are very exciting! ;) Hope to see you running next time we come visit.
Hi, I just found your blog, and I wanted to say that I am so sorry that Charlie has to go through all of this. What a sweet little trooper. My daughter, Maren, was diagnosed almost a year ago, and is currently in maintenance. Like Charlie, her diaper rash during and following induction was absolutely awful - she had to be admitted twice for inpatient stays because of it. I think the only things that really helped it to clear were only using sterile gauze with water(instead of wipes), having her sleep diaper/pants free on waterproof pads that were constantly changed to air her out, and appyling Pink-xav(pinksalve)that can be ordered from CVS pharmacy and usually available the next day - this cream worked better than anything prescribed or the special paste made by the hospital pharmacy. I'm so glad you're all at home and that Charlie is starting to walk again!
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