Well, day three was pretty busy around here. Charlie had a lot of visitors, which was great. We have a lot of great friends and appreciate all the well wishes. Day three was also full of a lot of education. We learned a little about what life is going to look like for the next year. Just when we thought we had heard about all the drugs, we learned of a new one that we only take on Saturdays and Sundays . . . how strange! Throughout the day, Charlie was in pretty good spirits. He got to play in the toy room and make some trips around the hospital in his wagon.
Day 4 was a different story. We had fewer visitors, which turned out to be a good thing because the effects of the medicine started to set in. Grumpy was the word for the day, though Aunt Lisa was able to coax out a few giggles with "Little Man". Thank you to Cousin Sam for sharing your visit from Aunt Lisa.
The prognosis is still great and it was confirmed today that we will be heading home tomorrow as long as Charlie reacts well to his PEG shot. This was welcome news, but we're a little nervous knowing that we can't rely on the nurses to administer all the medications.
1 comment:
I'm glad to hear you guys have had some good visitors and Charlie can go home tomorrow. Praying for him and for the two of your every day. Love and kisses from Aunt Olivia....XOXO
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